Monthly Archives: April 2022

Comments Off on MN Medicaid State Agency Medical Director – Dr. Nathan Chomilo – suky suky suky

Alright – so, Dr. Chomilo is the state Medicaid agency’s medical director. He is an African American whose parents are from Africa. I tell you he is all kinds of goodness poured into a cup of tea. Oh please, get your mind out of the gutter; I have shoes older than him. Kidding aside, I first heard this guy testifying in MN House Health and Finance Committee several weeks ago about Minnesota’s health disparities. At first, I thought – oh great it must be an election year. Tell us again how bad black and brown Minnesotans are doing. What would an election year be for democrats to not mention how bad things are. Oh wait, they have been in charge and have done nada, but they always come back to tell us this time it will be different. Because this time they will (Sally Field) really really really like us.

We have seen this movie and we know how it ends – no change; just take our votes for granted. Then I listened to him and watched his body language and tone. There is something real and authentic about this guy. I do not think he is faking it like so many in state government especially dflers do. He seems and sounds like he actually cares about the health and well-being of black Minnesotans. Time will tell. In my humble opinion, and if One Minnesota Hoax Gov Walz cares about health equity he would have hired him as the commissioner of the HEALTH department. You know, the do-nothing about autism nor health equity state agency headed by out of touch Jan M.

I hope he stays genuine and pure. I hope he accomplishes tangible results and fruitful outcomes for black Minnesotan’s health and wellbeing. The notion that DHS cares about health equity, especially under Gov Walz is an oxymoron, but I guess we will see how his efforts play out.

More about him, read here and here. 

The above words do not reflect any candidate, agency, or committee.

Idil – Somali Autism Mom & Advocae

Comments Off on Education Minnesota Finally Supports Keeping Students in the classroom – very nice

Alright – so, if you read my blog or know me, then you understand why I am not a big fan of any union most of all teacher’s union. Why? unions are good, right. Yes, if they are reasonable and protect the worker from big badass corporations. In the education system, this is not the case. Education Minnesota represents thousands of teachers who suspend and fail our kids with no accountability. Teachers are the people who refer the student to be suspended not the principal. The principal pushes the kid off the ledge, but the teacher is the person who puts the child on the suspension ledge. You dig? 

At any rate, Rep. Richardson has a bill that essentially would keep kids up to 3rd grade in the classroom, and wait for it…..drum roll pls……..teacher’s union (aka Education Minnesota) has finally supported it. No, not behind the scenes but with action. They actually sent someone to testify in support of this bill. Wow, I must be drunk or hell has frozen. Ok – kidding I do not drink, not yet. Kidding again. And, the bonus…more drum roll pls…….Commissioner of Minnesota Department of Education and their government relations person also testified in support of keeping kids in school. This better not be an election year hoax from the democrats.  

To those that may not yet understand the state legislative process. This language is now included in the big education omnibus bill which has the kitchen sink from the democrats in the house and the republicans in the senate. Then there will be what is called conference committee members. They will meet publicly and sometimes off the record to negotiate what ends up in the final bill that passes the conference committee. Finally, the governor signs it and that is how ladies and gentlemen laws are created.

Below is my testimony. 

Minnesota House of Representatives

Education Finance Committee

Chair: Davnie

March 31, 2022        

Re: HF 3401 – Keeping children in the classroom to learn 

Dear Mr. Chair and Members,

Many thanks again for the opportunity to testify for keeping young students and all students for that matter in the classroom. First, I want to thank the author of this bill – Rep. Richardson for her tireless leadership in education and equity.

I understand the principals do not support this bill, but I want to emphasize the principal is not the person who is in the classroom and refers the child to be suspended, it is the teacher. So, if the teachers support this language and want to keep kids in the classroom to learn then please do it. The teachers are the ones who are choosing to refer our kids to the principal’s office. The principal mostly agrees with the teacher and does the actual suspension.

I say this because often in politics we concentrate on what divides us, but in this case, the principals and the teachers are one in the same.

Mr. Chair, I humbly ask you to carry the suspension language this legislative session to the finish line. Please do not allow it to fall off during the conference committee negotiations.

To legislators who say, there are laws against racial discrimination. Yes, you are right – it is illegal to discriminate against any student because of their color or disability. So, then what is the problem? Why do we have un-even numbers when the behaviors are the same but the color and/or disability status of the student is different?

Mr. Chair and Member, you see, discrimination does not happen blatantly like George Wallace’s days of segregation today, tomorrow, and forever. It happens in subtle manners that are extremely hard to prove in courts even when factual numbers are clear. Let me give you an example:

A white female teacher can have two students of the same age, same height, same weight, same grade, even same disability; the only thing different is one is black, and one is white. When they display the same behaviors – the white teacher sees the black child’s behavior more severely than the white one. Why? Because from her lenses, from her experience, from her background, from her world – she is able to relate to the white kid. This is not right or wrong. It is actually human. We all can relate to those that we have experience with better and more comfortable.

My airport story with my kid with two different people in a similarly situated situation is the perfect example of how we as humans relate to those that we have something in common with. (I will tell this story if I am allowed as it may take another minute or so).

In summary, I commend what Rep. Richardson is trying to do which is leveling the playing education field so that every child has the same opportunity to learn and there is no room for unconscious biases. I applaud her for that and hope that you are able to agree and support this legislation.

Thanks as always!

Idil Abdull – Somali Autism Mom & Advocate

 

The above words do not reflect any committee, agency, or candidate.

Idil – Autism Mom

Comments Off on EAA Update – Testified at MN Senate Human Services Reform Finance and Policy Committee

Alright – so, I also testified today at Sen. Abeler’s committee in MN State Senate. I sooo miss this committee. Anyway, my tiny little goal here is not much. It is simply DHS to train counties and empower them to ensure autism families and other individuals with disabilities understand what the heck EAA is, have choices, and are supported in a manner that is person-centered and cost-effective.

I do not think this is too much to ask. Akh, I miss Alex B at DHS. She would’ve fixed this and I probably would not even need to testify anywhere.

My favorite part of today’s testifiers – Kurt Rutzen; he is a disability advocate who brought us to tears. Then Rich N spoke, (what a small world) about mental health and law enforcement. I know rich well, he actually trained me on how to request public data. If it is about data laws, he is it.  He is part of an amazing group of people who are reporters and lawyers, my favorite people, seriously.

Minnesota State Senate

Human Services Reform Finance & Policy Committee

Chair – Sen. Abeler

Tuesday, April 5, 2022

Re: Committee Omnibus bill, the policy bill is SF 4165

Dear Mr. Chair and Members,

Many thanks for the opportunity to testify today. I have missed this committee’s friendly faces. First, I want to thank Sen. Abeler again for helping us pass EIDBI benefit years ago. Because of your support, there are thousands of children with autism being served under the EIDBI benefit.

I am here today to ask you to keep your original goal of always ensuring there is broad stakeholder input in EIDBI which would include autism parents, families, advocates, and providers. Line 187.7 states “in a manner that is determined by the commissioner.” Is it possible to add (in collaboration with stakeholders)? This will ensure DHS is not deciding on EIDBI services without getting input from families and providers. It has already been frustrating and difficult at DHS without Alex B there. I hope we make sure autism families are at the table with DHS and not on the table.

EIDBI Background: I thank Abeler and Liebling for adding a background study to be done before staff have access to these vulnerable children last year. Sadly, again because Alex B is not there anymore, DHS has put our children in harm’s way. They have allowed staff to have access to these vulnerable children before their background study is completed. DHS is now using a new vendor who seems to not have enough time for appointments, is taking longer to process applications, and costs more. Please tell DHS to not put our kids at risk. The person’s background study must be cleared before they have access to the kids. What if (God Forbid) a child gets hurt? What then?

I heard this committee discussing comparable situations for childcare providers which I agreed with. No child should be put in harm’s way because DHS cannot seem to find a good vendor to complete fingerprinting on time.

Finally, I would like to raise awareness of an area that is under HCBS – Environmental Accessibility Adaptation (EAA) This is a waiver service for people with disabilities including autism. As our children get older, we want to ensure they are living in their homes and communities. Currently, there is no guidance from DHS for the counties. Essentially, we have 87 counties and 87 rules. The assessments and installation of home safety modifications have no check and balance. They can cost thousands with no oversight nor support from DHS just letting the vendor decide. Vendors charge whatever they want, some even send their invoices after the fact without the family’s input or even knowledge and the county just pays for it.

When I asked DHS if they can offer support to families, they said we can complain to the Better Business Bureau. I am sorry but what is BBB going to do about a publicly funded waiver program? Again, because there is no Alex B there, it is easier to pull your teeth without anesthesia than to have a reasonable conversation that ensures people with autism and other disabilities are supported by DHS.

I am hoping you can ask DHS about this and find a way to make this program one that is based on person-centered, quality work and is cost-effective.

I have attached what is on DHS’ website for the EAA, as you can see there is no set rate and no guidance from DHS.

https://www.dhs.state.mn.us/main/idcplg?IdcService=GET_DYNAMIC_CONVERSION&RevisionSelectionMethod=LatestReleased&dDocName=dhs-286680#

 

Thanks so much as always!

Idil Abdull – Somali Autism Mom & Advocate

 

The above words do not reflect any candidate, agency, or committee.

Idil – Autism Mom & Advocate

Category: Autism Policy

Comments Off on Update on EAA advocacy – I testified before Scott County Commissioners Board today

Alright – so, this has become an issue that I would like to advocate for or even have those in power understand what families and people with autism and other disabilities go through. Essentially, we have 87 counties and 87 rules and policies. DHS has a hands-off approach and counties are simply winging it.

Below is my testimony. Oh, I forgot – the county commissioners gave me 5 minutes. Whoa, what – whole five minutes. That is enough time to read a novel. I am so used to the 2 minutes from the state legislature. On a non-related to EAA, I stayed and listened to the county board meeting; I loved their discussion, their compassion, and how they interacted with each other.

Scott County Commissioners Board Meeting

April 5, 2022

Re: Health and Human Services – Environmental Accessibility Adaptation

Dear Board Members, Good Morning:

My name is Idil Abdull; I am a Somali autism mom and advocate. First, I would like to thank again my county commissioner Barb Weckmann Brekke for always supporting my son who has autism.

I have a son with autism, and we have lived in Scott County for decades. I come before you today to raise awareness about environmental accessibility adaptation (EAA). This is under the state waiver system that supports people with disabilities where the funds flow through the counties.

As you know, we want all people with disabilities to live in their homes and communities. The EAA is supposed to support this effort and make the person’s environment modified for their safety, health, and well-being.

I have encountered some difficulties with EAA in Scott County as commissioner Barb can vouch for. I am asking for a system that gives the person with the disability choices but also ensures cost-effectiveness and support for the family.

My son needs home safety modifications and just the assessments alone as no installation has been done thus far is thousands of dollars. When I contacted the county leadership, I was met with resistance. They said I need to just deal with it because things are expensive now and that is the way this county does it. I respectfully disagree with that.

As an advocate, I have helped other families in other counties. For example, Hennepin County does not just pay for whatever invoice the EAA assessor sends. First, they ask for the rate and total hours needed to complete the whole project, then they approve or deny it if it is not cost-effective all while providing choice to the person/family.

In parallel, Scott County just pays the invoice from the EAA assessor without approval or even knowing their rate and their total hours. This cannot be good for the person with the disability, and I can’t imagine being helpful for the county.

I am asking that Scott County reviews EAA assessments and then approves pends, or denies them. I am also asking the county supports and explain the process to the families as we are not experts in this.

I thank you much for your time and hope that you will consider my suggestions. At least, have conversations about it. The ultimate goal should be supporting people with disabilities in a manner that is person-centered with reasonable cost-effective measures.

Below is a helpful link that explains a bit more about EAA.

https://www.dhs.state.mn.us/main/idcplg?IdcService=GET_DYNAMIC_CONVERSION&RevisionSelectionMethod=LatestReleased&dDocName=dhs-286680#

Sincerely,

Idil Abdull – Somali Autism Mom & Advocate

 

The above words do not reflect any candidate, agency, or committee.

Idil – Autism Mom & Advocate

Category: Autism Policy