OK, so what would happen if this study says, autism is NOT higher among Somali kids born in Minnesota?
After I scream and pull all of my hair, I would blog and be vocal on how ICI planted such seeds in who they hired to do the surveillance part of the study. They made every attempt to not hire anyone from the community, hire one a year into the study and try to confuse us in the process.
2. How ICI almost never explained this study to the families. There are some who don’t even understand this is a data counting study and not a cause study where blood was needed to be collected. Misunderstanding is so high on purpose by ICI.
3. How they turned or manipulated the person they hired from the community to be the eyes and ears of parents into their own little useless and spineless puppet. Awesome!
4. With all of this talk of tackling disparity, ICI refused to hire minorities in a minority study that was solely advocated by minority autism parents. I am getting a headache by this writing this sentence.
5. My fav line when they say, oh our vocal words are hurting them. Really, how about your actions are hurting Somali autism families. How about ICI tries to grow or buy some compassion (I heard there were some on sale for the holidays) and understand our frustration with autism and how it altered our dreams and our homes.
On the other hand, the results of this study could be so different from Brick township NJ because we see autism and lots of it with our eyes.
If the case is that the numbers are accurate and ICI grows or buys some compassion and understands by doing a fair and just data counting, then I will apologize til Timbuktu. Really.
For the record, by no means – am I blaming the funders as they are only funders and not doing the research.
God Bless!
Idil – Autism mom