Alright – so, first my heart and prayers are with all the families who lost children to drowning. Sadly and heartbreakingly, there were two children with autism who drowned last year in Minnesota. No family should go through that.
This gained a lot of news attention and rightfully so. It also made lots of people get interested in this issue and advocate for it from different perspectives. Sen. Mohamed in Minnesota Senate introduced a bill SF 3040 to modify the current language in waiver services under CDCS and CFSS. She attempted to explain to allow families who already has wavier or CFSS services to use such funding for swimming lessons.
Now, that is a lot to understand and process unless you are a waiver policy junkie which I am. Sen. Mohamed was not able to clearly explain when Sen. Utke and Sen. Abeler asked – does this have a fiscal note. DHS person said – maybe, we do not know. DHS should know better.
Let me explain in the words of Denzel Washington in Philadelphia:
- No, this bill should NOT have any fiscal note.
- Yes, the current policy technically should allow it because it is a waiver that is person-centered and consumer directed.
- Yes, autism families including me and countless others have gotten swimming lessons for their children with autism via the waiver CDCS.
- Recently, counties have started denying autism families the whole cost by not saying it is a recreational but that families should pay the extra cost that is beyond what it would cost for a typical child. Example: You have a typical kid who is getting swimming lessons in a group setting because he/she has no sensory, safety, motor imitation issues and can learn how to swim in a group of 2 or 3 other kids. That cost is $50 per lesson. In parallel, a child with autism has no safety skills, has sensory issues, and no imitation skills. He/she needs one on one swimming lesson that will cost $75 per lesson. The counties started saying the waiver will cover the additional cost that is above and beyond what a typical kid needs which in this case would be $25 per lesson. The counties say parents still must bear some responsibility taking their child to swimming lessons and we will cover the extra fee.
- I agree with that because the waiver should not replace parental responsibility. If your child does NOT have autism, you should still take him/her to learn how to swim. That is parental responsibility. The county does not typically say swimming is a recreational.
- Now, let’s say a typical child learns how to swim in 25 to 30 lessons which is the average but a child with autism will take years to learn then the county approves the cost above and beyond the cost for a typical child. I also agree with this.
- Finally, any family whose swimming is denied by the county via CDCS or CFSS can appeal to a judge. I know families are not lawyers but after a while it gets easier to just appeal if the policy is in your favor which it is if asking above and beyond swimming lessons than a typical child.
- Oh and the Hopkins kid’s name is Waeys not Aways. Plus, it would’ve been right to name this bill after him and Mohamed, and ask their families to testify. That is more powerful than anyone else – to hear from the parents who went through it.
In summary, while the bill has good intentions, the explanation was less than stellar and not cohesive by Sen. Mohamed, DHS nor the testifiers.
The above words do not represent any candidate, agency, or committee.
Idil – Somali Autism Mom & Retired Advocate