July 9, 2013 IACC Full Committee Meeting @ NIH, Bethesda MD

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Today’s IACC meeting was agenda packed and very good – I would even say great talk and discussion. I know even after we literally sit there and take in information and debate for over 8 hours – it just doesn’t seem enough time. Because of the topics and the number of presenters – there was no time for even 5 minute breaks today. 

Below is the final agenda and discussions which can also be viewed online at IACC website @ NIH.

IACC Full Committee Meeting Agenda

Tuesday, July 9, 2013
9:00 a.m. to 5:30 p.m. Eastern

National Institutes of Health
31 Center Drive/Building 31
C Wing, 6th Floor, Room 10
Bethesda, Maryland 20892 

Map and Directions

The registration desk opens at 8:00 a.m. Eastern for members of the public attending in person, and the meeting will also be available to the public by live videocast and conference call. The materials for the meeting can be found here.

Time Event
  9:00 a.m. Welcome, Roll Call and Approval of Minutes

Thomas Insel, M.D.
Director, National Institute of Mental Health
Chair, IACC

Susan Daniels, Ph.D.
Acting Director, Office of Autism Research Coordination, NIMH
Executive Secretary, IACC

  9:05 Racial and Ethnic Differences in Subspecialty Service Use by Children With Autism

James Perrin, M.D.
Professor of Pediatrics, Harvard Medical School 
Director, Center for Child and Adolescent Health Policy
Massachusetts General Hospital

  9:20 Commentary on Parent-Physician Efforts to Address Wandering

James Perrin, M.D.
Professor of Pediatrics, Harvard Medical School 
Director, Center for Child and Adolescent Health Policy
Massachusetts General Hospital

  9:30 Panel on Comorbid Conditions in People with Autism

  9:30-9:45       Comorbidities Among Patients Served by the AutismTreatment Network

James Perrin, M.D.
Professor of Pediatrics, Harvard Medical School
Director, Center for Child and Adolescent Health Policy
Massachusetts General Hospital

 9:45-10:00      Gastrointestinal Disorders in Patients with Autism

Timothy Buie, M.D.
Associate, Department of Pediatrics
Massachusetts General Hospital for Children

10:00-10:15     Catatonia in Autism Spectrum Disorders

Lee Wachtel, M.D.
Medical Director, Neurobehavioral Unit
Kennedy Krieger Institute

10:15-10:30     Immune and Metabolic Conditions in Patients with Autism Population

Richard Frye, M.D., Ph.D.
Director of Autism Research
Arkansas Children’s Hospital Research Institute 
Associate Professor of Pediatrics
University of Arkansas for Medical Sciences
College of Medicine

10:30-11:00     Committee and Panel Discussion

 11:00 Meeting Report: Environmental Epigenetics Symposium
Held: March 22-23, 2013, UC Davis MIND Institute, Sacramento, California
Sponsors: Autism Speaks, Escher Fund for Autism and UC Davis MIND Institute

Jill Escher
Escher Fund for Autism

Alycia Halladay, Ph.D.
Senior Director, Environmental and Clinical Sciences
Autism Speaks

 11:30 Rethinking Nonverbal Autism

Portia Iversen
Parent and Advocate
Founder, Cure Autism Now Foundation

 12:15 p.m. Lunch
  1:15 Oral Public Comments Session
  1:50 IACC Discussion of Public Comments
  2:15 Break
  2:30 Panel on Wandering

2:30-2:40         Wandering and Autism: What We Know, What We Need

Wendy Fournier
President and Founding Board Member
National Autism Association

2:40-2:50         IACC Activities to Address Wandering

Alison Tepper Singer, M.B.A.
President
Autism Science Foundation
Member, IACC

2:50-3:10         The Amber Alert Program

Robert Lowery
Executive Director, Missing Children Division
National Center for Missing and Exploited Children

Jeff Slowikowski
Associate Administrator, Office of Juvenile Justice and Delinquency Prevention
U.S. Department of Justice

3:10-3:30         Committee and Panel Discussion

  3:30 Tips for Early Care and Education Providers 

Shantel Meek, M.S.
Policy Advisor, Early Childhood Development
Administration for Children and Families

  3:40 Science Update

Thomas Insel, M.D.
Director, National Institute of Mental Health
Chair, IACC

  4:00 IACC Business

Thomas Insel, M.D.
Director, National Institute of Mental Health
Chair, IACC

Susan Daniels, Ph.D.
Acting Director, Office of Autism Research Coordination, NIMH
Executive Secretary, IACC

4:00-4:15         DSM-5 Planning Group Update

Geraldine Dawson Ph.D.
Professor of Psychiatry and Behavioral Sciences, Duke University
Chair, IACC DSM-5 Planning Group

4:15-5:00         OARC and IACC Business Update and Discussion

Susan Daniels, Ph.D.
Acting Director, Office of Autism Research Coordination, NIMH
Executive Secretary, IACC

5:00-5:30         Round Robin and Open Committee Discussion

  5:30 Adjournment

Thanks.
Idil – Somali Autism Mom & Minority Advocate

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