Comments Off on IACC Full Committee Meeting July 8, 2014 – Agenda
This will likely be the last full IACC meeting for the current Autism Act authorized by Congress in 2011. The next cycle should start after Sept 30, 2014 provided it passes out of the Senate floor and signed by President Obama. For below agenda, I am particularly interested in CMS’s state of the states status on autism treatment and services for low income autism families on Medicaid and how it compares to private insurance mandates of over 36 states.
State of Washington low income autism families sued the state Medicaid agency for not providing autism early intervention coverage and won was recently allowed to provide autism therapy through their state plan by CMS. I think that is great and I would like to see other states follow same route, not necessarily through lawsuits, but a CMS that is open to covering autism therapy for all low income autism children nationwide. Otherwise what is the point of learning the signs early – if you can’t act because Medicaid refuses to cover research based intervention.
Tuesday, July 8, 2014 9:00 a.m. to 5:00 p.m. Eastern
The Neuroscience Center 6001 Executive Boulevard, Conference Rooms C and D Rockville, Maryland 20852 Map and Directions
On-site registration is from 8:30 a.m. to 9:00 a.m. Eastern for members of the public attending in person, and the meeting will also be available to the public by live videocast and conference call.
Time
Event
9:00 a.m.
Welcome, Introductions, Roll Call and Approval of Minutes
Thomas Insel, M.D. Director, National Institute of Mental Health (NIMH) Chair, IACC
Susan Daniels, Ph.D. Director, Office of Autism Research Coordination (OARC), NIMH Executive Secretary, IACC
Susan Daniels, Ph.D. Director, Office of Autism Research Coordination (OARC), NIMH Executive Secretary, IACC
9:45
Neuroimaging the Full Spectrum of Autism
David G. Amaral, Ph.D. Distinguished Professor, Department of Psychiatry and Neuroscience Chair, Beneto Foundation Director of Research, UC Davis MIND Institute University of California, Davis Director, Autism BrainNet
10:15
Autism BrainNet
David G. Amaral, Ph.D. Distinguished Professor, Department of Psychiatry and Neuroscience Chair, Beneto Foundation Director of Research, UC Davis MIND Institute University of California, Davis Director, Autism BrainNet
Michelle P. Freund, Ph.D. Chief Neurotechnology and Molecular Biotechnology Programs Office of Technology Development and Coordination National Institute of Mental Health (NIMH)
11:20
Briefing on State of the States
Sonya Bowen, M.S.W. Health Insurance Specialist Disabled and Elderly Health Programs Group Division of Long-Term Services and Supports Center for Medicaid and CHIP Services Centers for Medicare & Medicaid Services
11:50
Lunch
1:00 p.m.
Public Comment
1:30
Discussion of Public Comment
1:45
Update on the South Carolina Children’s Educational Surveillance Study (SUCCESS)
Laura Carpenter, Ph.D., BCBA Associate Professor of Pediatrics Division of Developmental and Behavioral Pediatrics Department of Pediatrics Medical University of South Carolina
2:15
Break
2:30
Panel on Autism Trajectories
2:30
Audrey Thurm, Ph.D. Staff Scientist Pediatrics and Developmental Neuroscience Branch National Institute of Mental Health (NIMH)
2:50
Catherine Lord, Ph.D. Director Center for Autism and the Developing Brain DeWitt Wallace Senior Scholar Professor of Psychology in Psychiatry and Pediatrics Weill Cornell Medical College/NewYork-Presbyterian Hospital
3:10
Rebecca Landa, Ph.D., CCC-SLP Fo
unding Director, Center for Autism and Related Disorders, Kennedy Krieger Institute Professor, Department of Psychiatry and Behavioral Sciences, School of Medicine Johns Hopkins University
3:30 – Discussion
4:00
Round Robin
4:00 – An Insider’s Perspective on Autism Noah Britton, M.A. Self-Advocate Member, IACC
4:15 – Teen Transition Sally Burton-Hoyle, Ed.D. Associate Professor Eastern Michigan University Department of Special Education College of Education Member, IACC
4:30 – Nevada’s Autism Treatment Assistance Program (ATAP) Jan Crandy Case Manager Nevada’s State Autism Treatment Assistance Program Member, IACC
4:45 – Home and Community Based Services (HCBS) Waiver Programs John O’Brien, M.A. Senior Policy Advisor Disabled and Elderly Health Programs Group Center for Medicare and Medicaid Services U.S. Department of Health and Services Member, IACC
5:00
Adjournment
As usual and a member of IACC – above words do not reflect any committee, agency or candidate.
