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Comments Off on MN Autism Legislative Task Force Updates & My take

The following are solely my opinions and do not represent the MN Autism Task force members or affiliations. I plan to write a serious of blogs about this as it is too long to lump it into one. 

Stay tuned for more shocking revelations from Norton and party since the autism queen of disparity joined this task force.

As you might have heard the MN Autism Task Force has become a joke and a circus ever since Rep Norton (the queen of autism disparity) joined few short weeks ago. 

What do I mean by this and let’s give some facts.
Fact One:
Right before Rep Norton joined as I mentioned in before blogs, MDH wanted to apply Federal HRSA autism grant. This was their 2nd try of this grant, they were denied the last cycle because they lacked a cohesive way of collaborating and partnering with minority communities. Keep in mind, I have been asking them to improve their relationship with communities of color, but why listen to us when they can talk and think for us. So, they never did have a good community of color outreach. Thus, their last two applications for autism federal funding were denied. 
Fact Two:
I ask MDH to share their denial letter with the task force and have an open discussion of the reasons for the denial and a way to improve and address that before HRSA announces the 2nd round of grant applications. 
Fact Three:
MDH’s Rep Dalbec refuses to share that letter claiming it is useless because HRSA’s new guidelines could be different. Think about that for a minute – MDH refuses to address its lack of minority outreach because it might not affect their next grant. The Autism Chair Trahan agrees with Dalbec and refuses to bring that denial letter for a discussion for over a year. 
Fact Four:
HRSA announces their new autism grant guidelines and walla – it asks minority community partnership and collaboration. MDH now comes to the task force and asks a support letter and they only have couple of weeks before the application is due. Now what now? Did I not ask these people to have an open and honest debate of why the last application failed and they refused. 
Yes, indeed I did. 
Fact Five: 
Mr. Trahan writes a support letter by claiming the “whole” task force supports it. Now what now.
That is totally wrong since I am a member and do not support given that I have been asking MDH and they have been ignoring and refusing specific minority language inclusion and sharing the funds. Further, MN Autism Task force is a public law and he refuses to have the vote public and have a debate on this important support letter.
Fact Six:
After such silly refusal – I went back to the leaders of the state agency representatives MDH, DHS, MDE and DEED. DHS right away supports what I was asking to be added which simply stated specific language that said how much of the $400,000 will be allocated for minority community based organizations, who they are and how long they will get the funding. Instead MDH’s rep Dalbec initially refuses that and just says their usual talking point of “we will include minority communities after we win the grant”. Of course, I don’t trust or believe her or MDH given their horrible health disparity record. 
MDE’s leaders also come on board and support our language in the support letter.
DEED rep Herzog says she was never asked for a support and has no comment. Then we go to the governors office and ask they talk to MDH to have inclusive and specific language for minority resource sharing of the funds. MDH’s Rep Dalbec then reluctantly says “we can’t add that, but we can take an addendum stating our language”. Think about that for a minute. Instead of having one letter of support from the whole task force, they would rather have two that sort of cancel each-other because one has minority inclusion and one does not. 
Finally and with great resistance and hesitation MDH’s Dalbec only adds grants of $70,000 will be awarded to minority based agencies as well as rural based autism agencies. If sharing such small funds is hard for them – imagine how hard it is for them to share bigger funds. That is exactly one of the main reasons why health disparity exist at Minn dept of health (MDH). The level of resistance from MDH’s CMH health is beyond belief. Sadly, not surprising. 
Fact Seven:
On the next Autism task force meeting, I ask the chair – Trahan who voted against minority inclusion portion, why we did not have a public debate and vote on it publicly. To my surprise, he states he never got that request. Now what now, because I sent kazillion emails stating that, but all of the sudden he has amnesia and has no recollection. I wonder where I heard that before – oh yeah Rep Norton and how she writes bias autism legislations then pretends to forget them. 
Fact Eight:
I then write a formal complaint about the chair and all of the sudden he blames me and resigns. All for what because I asked “minority community organization to get some of the $400,000 federal autism funding & a public vote on a support letter.” I kid you not that was why he resigned. I mean all that pressure of being inclusive can wear anyone down – I guess. I mean seriously, the self righteous and sheer arrogance of these folks is beyond imaginable. 
The drama gets more dramatic – stay tuned for the next blog!
Thanks 
Idil – Somali Autism Mom and Minority Advocate.

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Dr. Dawson and Autism Speaks Part Ways

Comments Off on Dr. Dawson and Autism Speaks Part Ways

Dr. Dawson is probably one of the best autism researchers and pioneers in the country. Starting with her days back in University of Washington where she started their autism center for evaluations and treatment which is one of the best in the country. 

In addition, Dr. Dawson has been in my humble little opinion the voice of reason and the backbone for Autism Speak’s research department as their chief science officer for years now. I remember when I first contacted Dr. Dawson back in 2010 when I was trying to raise autism awareness in the Somali community – my first thought was just try because why would a person with such caliber talk to me.
To my pleasant surprise, I was given a phone appointment in which I was so nervous and forgot what to even ask for at first. Eventually – I got enough nerve and asked if Autism Speaks could support autism in our community with research funding. Dr. Dawson was so sweet and kind that she took my request to then president Mark R and sure enough when I spoke at IACC in late 2010, Autism Speaks contributed $100,000 and technical assistance (from Michael R, another amazing researcher) to a Somali Autism research.
Then I remember after the meeting which I was also soooo nervous to speak given that is where America’s creme de la crem in public health is, she gave me a hug and said “you did great”. 
I will forever be indebted and grateful to Dr. Dawson. She is just such a kind hearted person that validates all autism issues. It is very difficult to please all autism families and parents because there is so much controversy and complexity, but somehow Dr. Dawson does it with ease and smoothness.
I thank you Dr. Dawson from the bottom of my heart and wish you well in your new chapter.
Thanks!
Idil – Somali Autism Mom & Minority Advocate

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Comments Off on NAACP President Resigns and why should we care?

National Association for the Advancement of Colored People stands for just that. It is one of the oldest civil rights organizations in the country and has done lots of good. 

However, lately especially under Ben Jealous – NAACP has become the do nothing substantial civil rights policy agency. I am sorry, but “marriage equality” or “immigration reform” is not an African American civil rights issue. Oh, I don’t know maybe health disparity including autism, racial profiling, stop and frisk bias laws, education gap, high unemployment and economic injustice might be true African American civil rights concerns that still linger.
In other words, what NAACP should be fighting for is the right for African Americans to have equal access to the American dream and part of the American pie. This can be done nationally and state by state through legislation and resolutions. Instead Mr. Jealous has been on a media campaign on unnecessary things because he is media savvy and charming for the wrong reasons.
At any rate, Mr. Jealous abruptly announced yesterday that he was stepping down as 
President and CEO of NAACP. Under President Obama – the first African American President – so much could and should have been accomplished by NAACP and CBC (Congressional Black Caucus) in Congress. 
Instead, all we heard was we need a “Black Agenda” and blaming the president, and don’t get me wrong President Obama sure could use a binder full of qualified African Americans for his high level cabinet and staff which still lack enough diversity. But, asking him to fix the Black agenda is like asking someone to make the Indian Ocean sweet by putting one bucket of sugar at a time. Seriously – that is inhumanly impossible. 
What might have worked is if Ben Jealous in collaboration with CBC actually wrote actual legislations and policies for the bias mass Black incarceration by making black and white crime punishment the same. By holding federal health and education agencies accountable for the grants and funding they give to state health and education departments, so that the resources are shared and African American communities are part of it. By repealing the stupid and bias stop and frisk – OK that happened by a judge. By supporting families and children rather than big union bosses and eliminating this persistent education gap between white and black students. 
If you are asking what does this have to do with Autism – well autism disparity exist in every state at every level by almost every state and Federal agency. Therefore, eliminating and having tangible policies that not only decreased disparity but eliminated it by having specific language then there would probably be no need for bloggers like me. 
So, in my humble little opinion – I am glad Mr. Flashy Jealous is leaving NAACP. One of my favorite African American professors also wrote his own opinions yesterday. Take a read here.
Thanks!
Idil – Somali Autism Mom & Minority Advocate

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Comments Off on Support from SAPA and CSCM for Idil in MN Autism Task Force

Alright, if you follow local news and/or local MN autism issues, you have heard that MN Autism Task Force had some members that left and some that have been appointed recently. All members of this task force are only appointed by an elected official, usually the senate majority leader or the speaker of the MN house. 

One of the new members appointed by MN House Speaker Thissen is Rep Norton. Yay, my least fav autism elected official in MN. Rep Norton has written and voted as I have said many times some really horrible autism policies. Rep Norton’s autism bills/legislations flat-out discriminated against low income autism families who are disproportionately minorities. The worst of it all is that Rep Norton does not want to own, explain or defend her legislatons, rather run away from them and pretend it did not happen or we are stupid.
At any rate, the first thing Rep Norton does when she joins our little state autism task force is pick on & try to remove the only black person in this committee which is me. I kid you not and of course her disparity creator pal – Sen Eaton quickly joins her along MDH & Pacer reps who I have blogged about their failed policies and hogging Federal/State funds which clearly have not decreased autism disparity in Minn. So, this was not a surprise in my opinion.  
Well  – needless to say, I am not going to be bullied by them or anyone about autism and fighting for communities of color and under-served families. In fact, such bullies energize me to advocate even more for so many voiceless minority autism children and parents. So, I contacted MN GOP, MN DFL, Minority Liberty Alliance and Somali community leaders. And I got a call and support from MN GOP and MLA who also sent supportive emails on my behalf. In addition, I received unparalleled support letters from Somali American Parent Association and Confederation Somali Community of Minnesota. MN DFL approach to this “drop dead & don’t care” which was not a surprise and is the norm for them. 
Nevertheless, I am sooooo grateful to MN GOP, MLA, SAPA and CSCM (which is the biggest Somali Community center MN and in the country per the number of Somalis it serves). I am also thankful to everyone especially parents who contacted me offline. You are all truly the wind behind my little wings. Thank you very much!
Here is the bottom line and a fact; MN Autism Task force is a public law written by Rep Mack (R) from Apple Valley and it has specific charge which is in a nut shell to write and implement a statewide autism plan from birth to adulthood across the spectrum. Nothing more and nothing less is needed. We are not there to be friends or enemies – just to debate autism policy publicly, vote on them publicly and defend our votes for All Minnesotans dealing with ASD. There are 19 members in this task force and I was nominated by chair of health and human services finance committee, Rep Abeler and appointed by previous speaker of MN House Rep Zellers. Here is the ASD charge.
The notion and the audacity of any member of this task force to remove another member or dictate what any member can or cannot say in their own time in their own opinions is silly, ridiculous and wrong. Rep Norton or any other public official has zero right & nerve to bully another member who disagrees with their autism policies. 
Therefore, what I think of xyz MN elected officials public policy is my own opinion and my right. 
My advice for Rep Norton and Sen Eaton would be – don’t introduce policies that you are going to be ashamed of in the first place. And your autism bill which said limited coverage for low income kids and unlimited coverage for wealthier kids is a shame in every sense of the word. I did not write that bill – you did and you should own it and defend it to all of your voters. 
These are my opinions, what I think and do not represent MN autism task force or any committee.
Thanks!
Idil – Somali Autism Mom and Minority Advocate 

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Comments Off on Gov Dayton & Autism in Minnesota – how is it going?

Alright, as many remember Gov Dayton of Minnesota won with less than 9000 votes back in 2010 and is up for re-election in 2014. What does this mean for our community of over 50 thousand which seems to suffer and struggle with autism at a higher rate. 

Well, let’s think about this and hopefully use our votes wisely next time. One of my favorite African American Journalist and blogger Lauren from Crewof42 wrote once Jack Lew to Detroit “drop dead” and $1.5 billion to Egypt – Zero for Detroit. See that blog here.
Gov Dayton met non-minority autism families on world autism day in 2013. They were given an opportunity to tell him their pain and frustrations. To us in minority autism families we were told he is too busy for us, in layman’s terms – drop dead. See that story here and notice there is not one single parent of color.
I know every elected official has some kind of gate keepers to filter information and prioritize and I must say Gov Dayton’s gatekeepers are as heartless as a hammer. Remember when his chief of staff Smith was the chief of staff for Mpls Mayor and was called velvet hammer in city hall. See that story here.
Well, in my humble little minority autism mom opinion – I like to think we have been treated with heartless hammer and get lost attitude from every corner in this administration. Also, remember when Gov Dayton was a candidate and we were told “he will be better than Gov Pawlenty” because his administration will reflect Minnesota and have more minorities. Well – Gov Pawlenty had one person of color in his cabinet and – Gov Dayton (the great savior) has two. Yay! See that here. For what it is worth here, it took one email to Gov Pawlenty’s scheduler Amy and one phone call to his policy adviser Brian LeClair in one day (if you can believe that) to get the ball of Autism in the Somali community rolling which resulted MDH research in 2009, MDH community forums in 2008, an autism professional forum in 2009 and a Somali autism brochure. With Gov Dayton, almost 4 years later, we are still begging, think about that.
Also, remember, when Gov Dayton got mad because the MN Senate did not confirm one of his nominees and he just gave her a job. See that story here. When our community centers struggle and they ask for support they are told by heartless hammer to drop dead or get lost. Remember when MinnPost did a story on what it would be like if the other side controlled and mocked the controlling side in 2011 & 2012 sessions. Well – in 2013 session, this side just added more committees, more chairs and more staff, but when our community centers struggle and ask for support, guess what they are told – drop dead or get lost, even though one of their board members Sen Cohen is the chair of the Senate full finance committee. 
Getting the hint here – please use your votes wisely and don’t buy into anymore useless campaign slogans. Judge them by their policies or lack thereof.
It will be interesting to see how Gov Dayton will spin his policies for 2014 elections and how all of these folks including Gov Dayton will make us think we are stupid or out of touch. I am sure they will hire couple of turofatoore communitiga hafiya oo aan fahansanayn the difference between policy from poop. We are a lot of things here in minority autismville, but stupid ain’t one of them. 
We have to vote better and wiser. 
Finally, I get asked to run for some kind of office and as flattering as that sounds, I will not for many reasons. First, there are much more qualified other Somalis already running this year and hopefully beyond. 2nd, if you have ever seen an interview between reporter Bill O’ Reilly and Rep Barney Frank that would be me at the MN state capitol because so many of these folks would irritate me so much, see that here. 3rd, if you follow education policy and remember from Washington DC schools – Michelle Rhee who fired everyone – that would me because I would first get rid of MDH’s CMH staff and combine MDH with DHS since there is no need for two health and human services agencies. And, that would probably piss off lots of people. 4th, and the most important reason – as much as I like to blog about our current MN politicians, I could not possibly do what they do. Sometimes these folks have to understand & comprehend hundreds and even thousands of bills and vote making decisions that would affect millions of people. That is a pressure and a job that needs someone smart & strong.
So, please support other Somalis and minorities running this year and next year from city council to county commissioner, etc – but also hold them accountable to their policies as well. 
Thanks!
Idil – Somali Autism Mom & Minority Advocate

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SRP Sub-Committee of IACC Meets

Comments Off on SRP Sub-Committee of IACC Meets

The Services, Research and Policy which is a sub committee under IACC (Federal Autism Committee) met today. As you know, the co-chairs are Denise from AHRQ and David from Univ of PA. The writings of this blog are solely my opinions and no way or shape reflect IACC or SRP.

I am a member of this committee and first I must say that there are not enough good words to say about Dr. Mandell. I simply call him Dr. ManDastik. David has researched and published so many autism studies including many on autism disparity. He is such an amazing researcher, yet so humble and deeply listens to other’s views and ideas. What more can an autism mom who is very much interested in autism disparity ask for.
We had two topics to talk about today;
First, Adults and autism. What services are currently available, what services and resources are needed given that autism is a disorder that lasts a lifetime. 
In this area, I would like a way for parents, families and care-givers to have a hub or a place with resources from transition from high school to college (if can) to employment (if can) to housing to recreational activities to support that is culturally and linguistically appropriate. There are many areas and sites to get information, but not one good place. NOW under ARC National has been funded by US. HHS, but I don’t think they have done a good job in connecting adults with autism and their families to appropriate support, services and resources. 
The 2nd item on the agenda was disparity in under-served communities. This area – I am very much interested given that I am a minority person and the secretary picked me because of my interest in helping those that have been traditionally under-served. 
As usual, David and Denise had great ideas in how to not just keep saying autism disparity exits, but how can we as a nation address this with concrete ideas and plans. My personal take is the problem lies with many of the US. HHS Federal agencies that keep funding state health departments despite their horrible inclusive records. In other words, HRSA, SAMHSA and others keep giving child and maternal health block grants, mental health grants, etc to the tune of hundreds of millions of dollars without any real way of measuring disparity reduction plan. In fact, many state health and human services departments have no plan other than tell us “we know we are not doing a good job reaching out to communities of color”. If I hear these meaningless words one more time, I am going to scream. 
Yet, the funds keep coming year after year after year with no measurable success by state health departments. This means the problem is really the Federal agencies and their policy makers because insanity is doing the same-thing and expecting different results. 
So, what can minority and under-served communities do? Well as the saying goes those in charge of these agencies get their funding from Congress who get hired by the people. Therefore, if people asked and demanded real change that makes a difference then it will happen. But if we keep voting for the same politicians who hire the same agency leaders who keep funding the same state agencies who keep ignoring our communities then we can only blame ourselves. 
Vote Wisely and keep asking questions and demanding equal access for all children and people with autism regardless of their income, race and nationality. 
We also talked about autism and co-occurring medical conditions which many folks were interested and have been advocating for especially SafeMinds and others. This is a tricky area because so many children with autism can and do have medical symptoms such as GI issues, Immune problems, etc. The problem is there are not much research on it, nor is there any proven medical interventions for it. I am hoping this area – IACC can recommend more adequate research funding as well as more awareness in pediatricians and family doctors. For example, when parents talk about their child’s medical symptoms – most doctors just brush that off and assume it is just autism behavior problems. The full IACC committee decided to have a subcommittee that will address this important topic. I am excited to see how this goes given that the new American Academy of Pediatrics Dr. Perrin acknowledged this huge problem when he visited IACC in July 2013. 
Thanks!
Idil – Somali Autism Mom and Minority Advocate

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Comments Off on 50 Years Later – Where is the Progress? Shall we wait another 50 for it?

Fifty years ago in 1963, an immensely talented African American man uttered words that would change American history. Let freedom ring, I have a dream that our children will not be judged by their color, but the content of their character. This speech no matter how many times you read can make you learn and grow as a human being.


Here is the text of the full speech – I highly recommend framing it and posting it in your house and teaching your children about it.


It was 100 years before President Lincoln’s Emancipation Proclamation. And, as Dr. King’s eloquent and heartfelt speech states it – there were still sufferings in equal rights, economically, employment, housing, health care, and justice just to name few.

This speech was the tipping point for the Civil Rights Act of 1964 which outlawed discrimination based on race, national, gender, religious, school segregation and public accommodations. Of course, many others followed including the 1965 and 1968 Civil Rights Acts.


All of this bloodshed, lives lost, generations suffered so that the next generation of African Americans would not have to go through the same pain and frustrations.


Fast forward to 2013 – 50 years later after the famous MLK speech and 150 years after Lincoln freed slaves. Black unemployment is the highest it has ever been and Minneapolis takes the cake of being the worst. Black education gap is higher than ever, Minnesota almost takes the cake – it is #48 worst out of 50 states. Black home ownership is at its worst, guess where it is the worst – wait for it….Minneapolis. Health disparity and gap for Blacks is at the bottom and Minn again one of the worst for health disparity gap even though it is one of the healthiest states. I can say more, but I am getting a headache.


As a Black autism advocate, I had the hardest time getting policy makers to understand equal means equal in Minnesota state legislature this year. It is why we need to rethink who we vote for and why. If we keep voting the same way, we will be at the bottom of every stat in another 50 years. If we don’t wake the heck up and demand equality means equality in employment, in opportunities, in education, in health care access and in justice, our children will be in worse shape. And, that is not a good legacy for any parent.


We need to fire and not vote for again any legislator who writes, votes and pushes unequal legislation or policy similar to the one Rep Norton has pushed for years for low income autism families who are disproportionately minorities. We can not afford to vote for the same people and somehow expect different policies.


On August 28, 2013 – there will be countless celebrations and remembrance across the country including one in Minneapolis. Here is the link and I urge folks to go and participate so that we are not asking for simple equality for another 50 years. Enough is Enough and the time for equal access to good education, healthcare & economic opportunities is today. I also highly recommend new immigrants from Africa go to these events and really take in and learn how our freedom today came about. We stand on many shoulders of African American leaders and we need to leave a better mark and policies in place for the next generation. Please note the Mpls events will take place on Sat Aug 24th, 2013.


Vote Wisely!

Idil – Somali Autism Mom & Minority Advocate

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Comments Off on What is good for the Goose is good for the Gander, right? Not so fast

As many know by now Abdi Warsame has won the MN DFL caucus to be the next city council member of Ward 6 in Minneapolis. To give a little back ground, Mr. Warsame did not just win, he knocked it out of the park with tons of votes.

Further, Mr. Warsame had a plan and a vision by working on the redistricting of this ward to assure that East African population was in the same district so that they can elect one of their own. If you hear this guys story of why he did this and why he chose to run, the hair of your arms will stand up. His story is inspiring and he tells it eloquently. Mr. Warsame gives hope to thousands of young Africans and other minorities that one day they can represent themselves, they can write their own policies and govern their own communities. He is the true deal.

Fast forward to today which unfortunately, the current city council member decided to defy the system and not leave graciously. To make matters worse, Mr. Martin, the chair of MN DFL sent out a letter to Minnesota democrats asking those running against another fellow candidate in a different ward 3 to respect the process, and not run because he won that caucus.

I guess my question then is if what is good for the goose is also good for the gander, why didn’t Mr. Martin send a letter on behalf of Mr. Warsame and ask his competitors to respect the DFL process and leave graciously?

My guess is that Mr. Martin and so many like him are still under the impression of we will talk for you, write for you and govern you. This is a bad policy at it’s core and Mr. Martin should do the fair and EQUAL thing and send out similar request for Mr. Warsame who after all won fair and square in his caucus.

If not, then we as minority communities need to rethink how we vote, who we vote for and why.

Insanity is voting for the same people and somehow expecting different policies. Listening to Mr. Martin when he is clearly practicing double standard is not going to empower our community or inspire our children.

Below is Mr. Martin’s letter to DFL supporters and I guess I am waiting when he will send out similar one for Mr. Abdi Warsame who deserves equal treatment. He even asks people to donate and indicates that historic DFL caucus. I am sorry, but are you kidding me. Who the heck in Minn or the world does not think Mr. Warsame made HISTORY? Will the real slim shady please stand up here, I mean seriously. Take a read below and you be the judge:

In the Third Ward Minneapolis City Council race, Jacob Frey demonstrated that our caucus and endorsing process works. His campaign drove the highest caucus turnout across Minneapolisand mobilized a diverse super majority of supporters to win the DFL endorsement on May 4.

But, after this record-setting turnout and a sea of red “Frey is my guy!” t-shirts at the convention, Council Member Hofstede went back on her word to abide by the DFL endorsement. We must show that the DFL endorsement matters and should be respected.

You can do so by helping Jacob reach his June fundraising goal of $10,000. He’s already 50% of the way there, but needs hundreds of donors standing with him. Every dollar counts. Please click here to rush your contribution of $10, $25, $50 or $300.

Let’s show that grassroots organizing can trump even the biggest of machines. Let’s show that the DFL endorsement process matters. Let’s do all this by helping Jacob towards another record-setting turnout … this time on November 5. Jacob has made history in this election and will continue to do so with your help.


We deserve better and we deserve equal treatment from Mr. Martin and his allies in MN DFL. I know this is not my usual topic for a blog, but if we are to think policies that affect our lives directly or indirectly come from politicians then we need to pay attention to those writing such policies and they must be fair by leveling the playing field for our own candidates. If you live under a rock and did not hear this, here is Mr. Warsame’s site for more information.
Vote wisely!

Thanks.

Idil – Somali Autism Mom & Minority Advocate

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Comments Off on Sen Franken in the HELP Committee – A waste or Not?

As many remember Senator Franken who was a comedian and a Hollywood darling won the senate seat with ONLY 312 votes in 2008, after a contentious fight with incumbent Sen Coleman.

Sen Franken has been a member of the HELP Committee in the Senate since then. Now, this is probably the most important committee there in terms of Health, Education, Labor and Pension. Yet, Sen Franken has failed, flipped and flopped here similar to a Saturday Night Live Sketch.

Let’s dig deeper;

When Sen Franken very narrowly won over our favorite Senator Coleman, we went to his office and asked if he would continue the great work started by Sen Coleman who was the first person that recognized our autism concerns and not wrote a letter to Gov Pawlenty, but to CDC and NIH. It was very surprising to see Sen Franken’s staff to be mighty arrogant for winning by just 312 votes. First, they ignored us then they said Gov Pawlenty is a different party so whatever Sen Franken asks will not be listened to. Then they told us Sen Franken is simply too busy for autism and the Somali community issues.

Then after Gov Dayton won in 2010, we went back and asked again if they would write letters on our behalf and ask the new health commissioner to address autism by continuing the previous commissioner’s work. And this time we were told – wait for it….

Ah, we think Gov Dayton’s administration is doing a good job for autism. Now what now?

Then they finally allowed us to meet Sen Franken who promised lots of things including writing a letter to Sec Sebelius to assure diversity in IACC. Sadly, most of his promises have been ignored by his arrogant staff again.

Fast forward to 2013, I hear Sen Franken is going around the Somali community businesses, shops and stores bragging how his office helped with autism. Now what now?

I even got a letter congratulating me when I was appointed to IACC. What – Sen Franken had nothing to do with it. Yet, he wants to take credit. In fact, it was Congressman Kline who wrote a letter to Sec Sebelius. But that does not stop Sen Franken claiming credit for things his staff ignored, disregarded and dismissed.

In addition, when we asked them to hire Somalis, we were told they just are not qualified, even though many of the applicants were highly qualified. By the same token, they keep hiring staff of minimum effort with careless attitude.

Further, many have heard the difficult times HBCU’s are having with Sec Duncan and the U.S Dept of Education, yet Sen Franken is MIA in helping them so that these historic Black Universities don’t close where thousands of students have suffered. See more here.

So, what can we do now? Well – thankfully Sen Franken is up for re-election again next year and we should do everything we can to make sure we get someone who will represent all of our concerns in Congress. Someone who will not play partisan politics and will just represent us. Unlike his SNL character I’m Good Enough, I’m Smart Enough, and Doggone It, People Like Me. It seems to me that minorities are not good enough or smart enough to be Sen Franken’s policy advisers or hold important positions. I think it has been a waste to have Sen Franken in such important committee and accomplish so little for Minnesotans.


The time to defeat Sen Franken is now. We need a real leader in Congress.

Thanks!

Idil – Somali Autism Mom & Minority Advocate.

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The Sandra Fluke Theory and Autism

Comments Off on The Sandra Fluke Theory and Autism

Remember when the committee on Oversight and Government Reform decided to talk about women and health care, but they forgot to include in their panels a WOMAN.

So, last night – MN Autism Task force held a meeting which I did not attend because they said my views and opinions will not be discussed. This is a legislative directed autism task force see below in that charge. No where in that bill does it say minority voices will be silenced. In fact, when the previous task force was writing the charge for this task force – they conveniently wrote it and excluded minority representation even though I was a member and just happen to be absent that day. 
Well – needless to say, I fought with tooth and nail and said no minority inclusion – no peace. Thankfully the author of the bill, Rep Mack who is simply fantastic said my ideas were good and that we should take out having specific agencies and instead have mainstream and minority autism advocacy agency representation. What a simple and fair idea, Thanks Rep Mack.
And, that is how this current task force membership was created. Move forward to last night, which we got Rep Norton (The Queen of autism disparity – not a typo) who replaced Rep Slawik (the reasonable one) told us she would get some mediation company who would be objective and neutral in helping us write some guidelines which we don’t need and already have a legislative charge. To make matters worse, this so called neutral company removed my views from the get go. Their reasoning – wait for it….it was not what the majority wanted. You think! And who the heck are the majority anyway. And to be neutral one should not take sides, apparently not by them. What a shock, someone Rep Norton knows who is bias from the gate, what a great way to be objective and neutral by excluding some. Awesome!
Let’s dig deeper. The majority who oppose my views and ideas are Rep. Norton (remember when she kept telling us the sun rises from the West and MN DHS paid for ABA autism therapy) It turns out the sun rises from the East and MN DHS did not pay for ABA Autism therapy. Hence, why the MN state legislature just passed this year to pay for, wait for it ….. ABA autism therapy. Rep Norton also wrote a bill that would have given the wealthy autism family unlimited hours and age ABA autism therapy – while the low income child was only up to age 7 years old. Can you believe that and we are not suppose to say that is unequal, unfair, bias and discriminatory policy. Are you kidding me – we are a lot of things, but stupid ain’t one of them. Rep. Norton needs to own and defend her policies. 
And, Sen Chris (I still don’t know how she won unopposed – really anyone could’ve defeated her – total clueless on many issues including the difference between ABA and PDD – NOS. Imagine that not knowing the difference between a diagnoses and a method of therapy). So, these two who are totally overrated and should be easily defeated next election are the majority. Oh and MDH’s new representative who I am not sure what to say other than. MDH does not hire based on merit or competence. And the last one is the representative from Pacer who as I blogged before just hogs federal and state autism funding while delivering mediocre record in improving disparity.
These folks decided to talk for and about autism, minority and diversity without actual minority autism community. Therefore, the Sandra Fluke theory of we know what you need and we will talk for you without you happened last night at the MN Autism Task Force. 
One of my favorite rules they came up with is we will remove a task force member who we don’t like or agree with in policy. And, we will have rules of what parents and others can or can not say in blogs or other means in their own time. Are these people kidding me. Do they live in an egg shell. I have to believe they don’t read autism blogs or follow soooooo many other autism parents who are way more vocal than I could ever be. Imagine if they were tried to be silenced. Heck – imagine if Rep Norton silenced me when she was trying to sell us ABA is covered by MN DHS. We would not have the amazing new legislation just passed by MN state legislature of guess what – that is right, covering and paying ABA autism therapy. And, if that existed then there would be no need for a new legislation, right. 
That is what common sense person would say, not Rep Norton or Sen Eaton. To them if they tell us the sun rises from the West then we better believe it. And, if they want to pull a Sandra Fluke thing and speak for us without us then we better thank them for it. I mean even Morgan Freeman only drove Miss Daisy in one movie, but Norton and Eaton want us Black folks to keep driving and buying their out touch policies that are wrong in every turn. 
Finally, my other favorite and stupid rule was when they said – we should talk in private about autism task force. Ah – this a public autism task force and should follow open meeting laws which is every decision made there should be public and debated publicly. Imagine arrogance and ignorance mixing, sort of like water and oil mixing. Not good right. Well neither are policies and stupid rules coming from Norton and Eaton or anyone who can’t just read the actual charge and follow it.
So, what happens now and how do we fight such completely out of touch policy makers. At the ballot with our votes, by protesting with our voices, at every corner with our opinions and with our ideas in every district. They are easily defeatable if we unite and look at their policies and not let them bully us for disagreeing with them and standing for our children and our communities. 
It is people like them that not only create disparity and discrimination policies, but try to silence those with different ideas. They are the opposite of what makes America – the greatest country in the world. A country where freedom of speech and political expression shall never be damped, silenced or stopped. It is why no matter what country one lives – they imagine their life would be better here. It is why thousands across the globe stand in line every year to migrate here.
We simply can not let the Norton’s and Eaton’s of this state dilute that perfect American image and that founders vision of everyone’s voice and ideas matter and should be respected and validated.
God Bless!
Idil – Somali Autism Mom & Minority Advocate.

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