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Alright – so, if you know me or read my blog then you understand how I detest Dakota county. I have a surprise for you. Carver is in the running for being another sh….t county. They screw with autism families particularly black and brown ones. They are lazy, rude, intentionally heartless and could care less.

Recently more Somali autism families have been moving to Carver County especially to Chaska and Chanhassen. I have advocated and helped autism families of different races and ethnicities but the treatments towards them is night and day. For the non-Somali families, Carver County comes out quicker, addresses the issues by asking ONE time. For Somali families, they are slower, ignore the family’s needs, try to trick the family by excluding who they chose to help, etc. This is typical for racist counties. They will say things like – we are going to deal with the family directly even after the family signs and asks me to help. I have seen this in many counties as far away as Rochester and even Duluth. This tactic will not work, and I suggest Carver and others stop trying to manipulate the families. Any family has a right to bring whoever they want to any situation for help, guidance, and support. The county does not dictate this, the family does. Let’s get this to your thick and unkind head.

Just like Dakota, Carver is very pretty but the devil always wears Prada. While the land is beautiful, the county commissioners, most of its middle management and even some of their elected officials who narrowly won are just as bad, if not worse.

I remember a Somali autism mom called me last year’s election night and said, “Rep. Noor came with another person asking to vote for her”. Imagine that. Noor is from Mpls, and he was door knocking for a fellow dlfer in Chanhassen. This tells you how close elections in this district and in general most of Minnesota is. None of them have room to be rude, cold, or arrogant.

Now, the county commissioners as white as vanilla. They can use some tan. I am not sure if we are there yet. As you know, Dakota had a Somali ran last election. Scott had a Somali run couple of years ago. Neither won but I think they did not campaign hard enough and deep into the rural areas. I think there is hope to replace them. I also think we need to keep going to their public hearings and testify by telling our stories and maybe one day the gazillion Somali reporters will write stories of how horrible Carver and Dakota counties are to black/brown autism families.

The above words do not represent any candidate, agency, or committee.

Idil Abdull – Somali Autism Mom & Retired Advocate

Alright – so, Dr. Eric Larsson is arguably the reason we have EIDBI in Minnesota, and not in a good way. Here is a brief history of who this bastard is:

1. He is a racist shithead who never took so many Somali autism children and discharged fast and abruptly the ones he took.
2. He is jealous of the Somali community’s quick learning skills and adapting to the environment.
3. He is jealous of the many Somali autism centers in Minnesota because he thinks they are taking money from his pockets.
4. He campaigned, testified, and lobbied against medical assistance covering ABA which is what later became EIDBI.
5. He is good at using Somalis against each-other. Divide and conquer is his to go to.
6. He is a thief who stole Medicaid funds to the tune of $2,862,769.00. Imagine if a Somali stole this much. It would be world news.
7. He is a grass snake who is constantly looking for his next autism family victim.
8. He manipulates DHS, especially EIDBI staff.
9. He will divide a brother from a sister if it benefits him. He will take milk from a baby for his bloated ego.
10. He will lie to everyone about everything – that is his DNA. He stole employees from Minn Autism Center who helped him so much at the beginning, and they sued him and won. The fact that MAC CEO talks to him now makes me nauseous. Larsson met in a coffee shop with his employer’s staff (MAC) and solicited them to come with him to a new agency he wanted to start (Lovaas). In other words, not only does he steal millions in Medicaid but he is ungrateful SOB who will steal anything and anyone. Imagine if a Somali has done this.
11. My advice to the Somali community especially the autism and maybe the museum is again – qofkii walaalkii loo xiiroow – adna soo qoyso. Larsson is using you to his benefit. He has a cold heart and a colder soul. He is useless to the unth power.

If you are a Somali or even other Black and Brown person and you are thinking he is harmless. Think again. Learn his history in autism and Minnesota first then judge him. Do not believe a word that comes out of his yuk mouth. It is full of worms.

Qofkii walaalkiis loo xiroo, adna soo qoyso.

The above words do not reflect any candidate, agency, or committee.

Idil – Somali Autism Mom & Retired Advocate

Alright – so, the chairs of human services in the Minnesota Senate and House (Hoffman & Noor) along with the state Medicaid agency commissioner (Harpstead) held a community town hall meeting on August 15, 2024. I know I am writing this blog a bit late, I am trying to retire and all.

Anyway, like an African wedding, they start unfashionably late. Then all three of them praise themselves on how good they are and have done. They tell us they passed this bill and that bill and they are yum yum. Most of the people, including me are thinking – what planet are they living. What now?

Ok fine, in the interest of fairness, they did pass some good legislation but not enough to praise them when they finally opened the mic to the public.

First, Noor tells all of us Somalis to make our comments short – I tell him – don’t dream. The commissioner tells us – thanks for your candid and frank comments. Well, her words were that, but her body language was saying to us “screw you”. No worries, we are used to this by now.

Finally, the public was allowed to speak. I had a long speech prepared for how racist and heartless DHS has been under commissioner Harpstead towards minority autism families and providers, then I heard so many others with real heartbreaking stories one after another, not that racism isn’t heartbreaking, but I bit my tongue and did not say what I wrote. Instead, I asked them to address clear disparities in DHS and hire more people who reflect the communities they serve. I also asked which is more important to me – lack of services for adults with autism. There is literally nothing for children like mine. When children age out of EIDBI and school, there are maybe less than 10 agencies that provide services – none of them look like us and they all have endless waitlists. This reminds me of the state of Minn before EIDBI when we had five agencies. Let me rephrase that – five blood sucking greedy racist crap autism therapy agencies. Ufta.

Sen. Hoffman said to me – Idil what is your deal with me, why do you keep writing negative blogs about me. What I find really interesting is when people are advocating at the state capitol, there are a lot of raw emotions and we all speak from our perspectives. However, when the session ends and you win some and lose some, it is all fair in love and politics. But when anyone who is black or maybe brown is advocating and says their opinions, white legislators and white state agencies take it personally, but they don’t take it personally when a white person does the same thing. I remember when I was advocating at the state legislator, I would see white autism families looked at as passionate and caring for their children. On the other hand, they would think I am angry, should have no right to have emotions or feel what I felt. Such double standard and they do not even realize it.

I also remember the level of disrespect they sometimes had for each other, but it was never personal – it was simply part of the landscape. One time, long ago, Rep. Thissen was in the health conference committee with Sen. Yvonne P Solon, and he told her “To come down of her high horse and walk on the ground”. I was sitting next to one of the health insurance lobbyists who said, “they are just tired now and insulting each other”. That was it, none of the legislators even noticed or commented on that disrespectful comment. Another time, maybe multiple times, the chair of the education finance committee in the house (CY) would scold and demean the members especially the republican ones and no one would blink or call her out. One time, she had a teenager meltdown and said to Rep. Peggy “not right now, I haven’t had my coffee yet”. Imagine if a black legislator said that it would make the news.

You see this double standard of I can say my feelings and my opinions as a white person, and they should be looked as my heartfelt opinion and perspective but God Forbid if a black/brown person says the same thing then – they have a meltdown.

Here is my say to Hoffman, Merz, Thissen and all those elite liberal white and privileged either publicly elected officials or work in a publicly funded agency – get over yourselves, it is not about you, if you want no one to be mad at your horrible policies then please find a job in a shoe store or maybe an ice cream shop. I am sure everyone is happy at those places. But if you choose to work in a publicly funded agency or are a publicly elected official then the PUBLIC in every race and ethnicity has the right to criticize, critique, and comment on your policies or lack thereof.

Now, I did say to Hoffman that I will write good review blogs if/when he does something good for autism. In 2024, he supported us when we needed to add QABA to EIDBI behavior analysis. Thanks for that. He also met with several Somali autism parents and promised them he will hold DHS accountable for their deliberate and subjective biased policies towards Somali autism centers and families.

The above words do not reflect any candidate, agency, or committee.

Idil Abdull – Somali Autism Mom & Retired Advocate

Alright – so, I highly encourage every autism parent and provider to use their voice and always be in the know about current EIDBI policies and changes the state wants to make. If we are not at the table, we are on the menu. We need to be vigilant and alert about autism and our children. Recently, DHS sent as required by law comments regarding changes they want to make to EIDBI. Any changes that DHS wants to make to EIDBI usually goes to CMS for review and approval. CMS pays a percentage of this and has to approve the state’s plan amendments. Below are my comments on the proposed changes to EIDBI that I sent.

My name is Idil Abdull, I am an autism mom, retired advocate and an EIDBI provider. I have spoken on numerous occasions, with CMS offices in Chicago and Baltimore about Minnesota Medicaid agency’s inability to be inclusive. The changes Minnesota Department of Human Services (DHS) is requesting as usual have no community or stakeholder input.

They will claim DHS EIDBI advisory council was consulted. Please remember this council has no access to the public, nor do we have access to them. DHS ensures the council meets behind closed doors and we have no ability to communicate with them. In a nutshell, they are used by DHS to justify their racial disparity creating policies and amendments.

I respectfully ask the Centers for Medicare and Medicaid to reject this SPA and ask DHS to ensure public input and collaboration is included. As we all know, Minnesota has some of the worst racial health and access disparities in the country, underhanded tactics like this EIDBI amendment is exactly why such horrible and shameful record exists here.

Furthermore, EIDBI statute 256B.0949, subd 8 (1 and 4) state stakeholder input and collaboration are a must. DHS is failing to follow state law and keeps changing EIDBI policies without any input or collaboration from stakeholders which should include parents, advocates and EIDBI agencies. Sadly, no one in Minnesota holds DHS accountable. I am hoping CMS will or at least ensure bias and conscious or sub-conscious racism does not prevail again.

Sincerely,

Idil Abdull – Somali Autism Mom and Retired Advocate

As usual, the above words do not reflect any candidate, agency, or committee.

Idil Abdull – Somali Autism Mom & Retired Advocate

Alright – so, I am sure you are thinking, Idil defending the Minnesota State Medicaid agency. What the heck, has hell frozen? No, calm down. I think I found another entity that I despise more – Minnesota Reformer. This wanna be news outlet, has been reporting negative and negative about Somali autism community. They are insulting us, making up things, using unverified sources, and just talking nonsense.

They said an anonymous source, so they sell it to us has complained to the state Medicaid agency (DHS) about a Somali autism therapy agency and apparently nothing was done. How primitive.
Let me explain something to you hillbilly writers – there is something called disgruntled employees who fabricate stories out of thin air. If DHS or any agency for that matter investigated every allegation that would be all they do and still would not cover all of it. DHS nor any agency has the resources or the staff to investigate fictional reports from fired or mad employees. That is simply insane and not possible.

The notion that DHS has the resources to do endless investigations is toddler reporting. I suggest you grow up and come to realville. Furthermore, if you did honest and thoughtful reporting, you could ask DHS how many anonymous complaints they get annually, of those what percentage is investigated and of that what percentage is found to be credible complaints. Instead, you find again someone who does not have the guts to come out, somehow and as usual tie to the Somali community who in your hillbilly eyes is bad to the bone then blame DHS for it. How un-journalistic of you.

In my humble opinion, what DHS can do is put a moratorium on approving new EIDBI agencies. Trian the current ones on policies and procedures in a manner that is culturally responsive. This means do not write things to an oral society, they won’t get it. Audit more and provide better quality oversight in all areas of EIDBI agencies to ensure children are learning. Hire and train auditors that reflect the people being served about autism and EIDBI so that they know and understand it better. Get the licensure thing going faster and include CTSS autism therapy agencies to ensure fairness and equity. There is always room for improvement and while I am usually never a fan of DHS, I defend them against the racially profiling and islamophobia MN Reformer. I don’t wanna start saying “DHS is doing a heck of a job” as I do not have access to their internal process but again there is always room for improvement for all of us and if anyone is doing autism therapy for the right reasons – then I support you and stand by and with you.

As usual, the above words do not represent any candidate, agency, or committee.

Idil – Somali Autism Mom & Retired Advocate

Alright – so, Minnesota Reformer has been targeting the Somali community and writing stories that are racially profiling as well as islamophobia. As anyone knows, unless it is about autism, I usually have no idea or even care. Lately, this online news outlet has for some reason decided to talk about Somali autism related issues.

Who the heck is Minnesota Reformer – as I have never heard of them until they wrote about Somali autism few months ago. They are under a non-profit news organization that claims to write about policy and politics. The Reformer was founded by a previous Mpls Tribune reporter Mr. Coolican. From what I understand he is as liberal as Walz. In other words, preach sugar but practice salt. They go after BIPOC communities particularly the Somali community in Minnesota. Why, you ask. Your guess is as good as mine. Maybe to get a bigger audience, they have to write “shocking”. stories that are based on demeaning our community and plant fear in other communities. They claim to be non-partisan and fair. If that is not the biggest oxymoron, then I do not know what is.

Their to go line is Somalis are bad, Somalis are bad, Somalis are bad – well you get the idea.

I and other Somali autism parents have tried to reach out to them to understand why all the hate towards our community. Why divide and use members of our community against each-other, they have refused as it is typical for liberal racists dismissed our olive branch.

What is interesting is they also write about how the GOP politicians are sooooo bad towards Muslims and minorities that they are completely oblivious to their own attitude towards our community.

They manage to always target our community and somehow connect it to bad bad and worse.

First of all, to their article that stated, “they call themselves autism moms”. We ARE Somali Autism Moms and effective current/retired advocates who have advocated for autism therapy for low-income autism families in Minnesota and nationwide.

Second, they cite Dr. Larsson (the crook of all crooks) who stole millions of Medicaid funds as though he is holy. Talk about racism and narcissism.

Third, even though they have or could get data that states the non-minority thieves who have stolen millions from Minnesota Medicaid, they pretend to look at that with a deaf ear and a blind eye. How typical liberal and lovely of them.

Fourth. It is not a crime to drive long to get medical care. Patients do it all the time. I drive my son for 1 and 1/2 hours to a speech therapy clinic that is for only 1/2 hour. I do this because my son gets wonderful therapy, and I would drive to Timbuktu and to the moon on needles on fire to get him therapy and intervention. Oh, and by the way, soooo many non-minority autism families also do this. Of course, when they do it, it is because they care about their children. When we do it, it must be wrong.

Fifth, when you report an xyz person who did xzy wrong and they are not Somali, you only report their name. In other words, you do not write John McCarthy stole millions of Medicaid and all his customers and employees were Irish. Or Mr. Feinstein stole millions in Medicaid and all his customers and employees were teenagers and Jewish. When it is Somali, you are soooo quick to state their ethnicity. Mr. Ali stole millions of Medicaid and all his customers and employees were Somali. There is a name for that, oh yeah, islamophobia and racial profiling. An old tactic that whites used/use to discriminate against BIPOC communities. How original.

Malcolm X is quoted to have said “the media’s the most powerful entity on earth. They have the power to make the innocent guilty and to make the guilty innocent, and that’s power. Because they control the minds of the masses.” Creating a world that is safe, just, and equitable for all requires us to interrogate every system and structure that exists, including our mass media. There is a bias in what gets reported and how the coverage is being reported. Words are powerful and the messages we consume from the media are often overlooked. We must be vigilant about calling out these inequities because of the direct impact that the media has in shaping our perceptions. The Reformer’s bias reporting has hurtful and heartbreaking consequences for our community. Sadly, how blacks and other communities of color are reported in the media is nothing new.

Again, I ask what is your beef with the Somali community? Why all this much hate? Why the double standard?

The above words do not reflect any candidate, agency, or committee and are solely my opinions.

Idil – Somali Autism Mom & Retired Advocate

Alright – so, if you know me or read my blog you understand my distaste for the current DHS commissioner and all her leadership team. They have done nothing about or for autism for years now. They do not train anyone including families and providers. They do not explain anything thoughtfully nor comprehensively. Then they have the audacity to complain to the media about people not doing what they are supposed to do. My favorite – oh wow the amount of funds has increased. Of course, village idiots when more children are being served then of course the funds will increase. That is how things work. First, train families and providers. Now, they have put Ms. Merz in charge and promoted her to be assistant commissioner in the disability area. What the heck?

Merz knows nothing about autism, EIDBI or any policy in my humble opinion. I think she is a privileged, white liberal woman who is entitled and protected. I have never seen her testify cohesively even when she took over Alex’s position. If you knew Alex, then you are lucky. Alex knew disability policies better than most. I remember when she first came to DHS from Hennepin County. She was humble, kind and always in the corner of people with autism and all disabilities.

Merz is clueless, egotistic, arrogant, out of touch, privileged, and entitled who thinks wrong and never does anything for autism right. One would ask why they promoted her to a higher position. Well – one name – Harpstead. Arguably, the worst and most racist DHS commissioner I have ever seen. Usually, DHS is never good even if the commissioner is, simply because middle management who never leave are the female version of George Wallace. But usually, if the commissioner is smart, and cares, she/he can direct lower-level staff to do better.

Harpstead and Merz are two peas in a pod. Well, actually at least Harpstead can fake testimonies and testify in the state human services committees. Merz looks nervous, cannot connect two sentences correctly and hardly testifies. Remember the number of times Alex would explain and testify at the state legislature about all things’ disability. Not Merz. She is yuk and yuky in my opinion.

They say all good things come to an end. I am hoping all bad things come to an end. I am hoping Walz’s term as a governor will end and we will get a new commissioner who then God willing will hire competent assistant commissioners. I for one cannot wait for Harpstead and Merz to go bye bye.

It seems that the new disability director who replaced Merz is Heidi Hamilton (HH). In the interest of fairness, which I cannot say the same for DHS in general, HH knows about statutes, policy, and disability almost as much as Alex did. After all Alex trained HH. From what I remember in my days at the State legislature, HH was quiet, neutral when needed to be, told facts when asked, and did not take sides. In terms of equity and inclusion which is a buzz word for most liberals who never mean it, HH did not care or understood it.

This is an election year folks, how we vote directly reflects who oversees so many things including DHS. Granted the One Minn Hoax Gov is not on the ballot, but the house is. We need to learn how to vote smarter and better. We must connect how we are treated and supported to our votes. Otherwise, our votes are Lax Ba’caad Lagu Lisay.

In the house: We need to vote out Rep. Kim Hicks who has worked behind the scenes against Somali autism families more than any other legislator. I think she is even worse than Rep. Kim Norton (current Rochester Mayor). If you know history then you remember – Norton was unapologetically against low-income autism families and MA paying for ABA therapy. They are both from Rochester and that county is as bad as it gets. Plus, Hicks campaigns against any Somali autism research. The nerve of her. I mean really. What the heck?

Autism in our community is 1 in 16. When I first started advocating – it was 1 in 32. How long can we sleep and be screwed with while our children get autism like it was candy. There are Somali families with two, three and even four children with autism. That should shock and anger all of us.

Something is happening in Minnesota. What if this is another modernized Tuskegee experiment? Think about it. Our teenagers who were lucky enough to not get an autism diagnosis are dying from drugs or in jail and our children are disproportionately being diagnosed with a disability. No way this is normal.

Qofkii walaalkiis loo xiiroow, adna soo qoyso. Ha is oran autism waxba igama galin.

The above words do not represent any candidate, agency, or committee and are solely my opinion based on my experience.

Idil – Somali Autism Mom & Retired Advocate

Alright – so, as an autism mom, I am tired 8am, 8pm, 1pm and 1am and in-between. I cannot remember the last time I slept 8 hours straight without interruption. This is the same for almost all autism parents. We are tired and exhausted. Children with autism often do not sleep at night. I once fainted after my son did not sleep for three days and nights straight. This is not unusual for our families.

For the Somali community, autism is soooo high and it is impacting us profoundly. When I see a Somali family with two-year-old with autism, my heart breaks. My son is 21 now and for our community to still have no answers is hard, heartbreaking and tiring.

We have to produce Somali researchers, BCBAs, licensed mental professionals, developmental peds, psychologists and psychiatrists. It is more tiring to be always alert with providers that do not reflect our community.

So, pretty please; if you a young black, brown and/or Somali person, learn to be any autism professional. Learn about autism, learn about our children, families and needs. We are in need of your services, support and guidance.

When I see a therapist that reflects my son, my heart melts and I am relaxed. I can speak for almost every minority autism parents. It is a different feeling.

Now, there may be some Oreo and twinkie people – I do not speak for you. You can read my blogs about Oreos and twinkies.

The above words do not reflect any candidate, agency, or committee.

Idil Abdull – Somali Autism Mom & Trying to retire advocate.

Alright – so, IACC. How is it possible for anyone who works with children with autism to not know about IACC. Seriously? Anyone who cites research, funding plus, plus, plus needs to know who IACC is, what they do and how you can be in the know about autism.

I have seen so many people including parents, therapists, agencies, etc. have zero idea about this federal autism committee. As the chair of NIMH and IACC – Dr. Insel used to say – if it is about autism, it is being talked in IACC. If it is about autism, IACC is on it.

My gently friendly advice is get to know this committee. Even apply to be on their public committee. As a public member, you are selected by the US. Health and Human Services Department. IACC is funded and governed by a federal law – autism cares. Get to know this law, the authors of it, the process of it, so on and so forth.

You cannot help children with autism and their families if you do not know what laws, rules and policies that govern the services.

The above words do not reflect any candidate, agency, or committee.

Idil Abdull – Somali Autism Mom & Trying to retire advocate.