Alright, so Tuesday July 8th, 2014 was the last day for this cycle of IACC (Interagency Autism Coordinating Committee) and I thought it ended very well. Here is my view and thoughts on this incredible journey I took.
After the usual introductions & Science update by Dr. Insel, our chair and Director of NIMH (National Institute of Mental Health) – we heard several autism researchers that quite frankly are the guru of autism research in this country. I was eager and very pleased with CMS’s presentation on autism therapy coverage which now can be done through EPSDT and states can add to their state plan. I think this was worth every emotional and highly intense conversations I have had with CMS for the past couple of years.
Here is the full meeting agenda:
IACC FULL COMMITTEE MEETING AGENDA
Tuesday, July 8, 2014
9:00 a.m. to 5:15 p.m. Eastern
The Neuroscience Center
6001 Executive Boulevard, Conference Rooms C and D
Rockville, Maryland 20852
Map and Directions 
On-site registration is from 8:30 a.m. to 9:00 a.m. Eastern for members of the public attending in person, and the meeting will also be available to the public by live videocast and conference call. The materials for the meeting can be found here.
| Time | Event |
|---|---|
| 9:00 a.m. | Welcome, Introductions, Roll Call and Approval of MinutesThomas Insel, M.D. Director, National Institute of Mental Health (NIMH) Chair, IACCSusan Daniels, Ph.D. Director, Office of Autism Research Coordination (OARC), NIMH Executive Secretary, IACC |
| 9:15 | OARC/IACC UpdateSusan Daniels, Ph.D. Director, Office of Autism Research Coordination (OARC), NIMH Executive Secretary, IACCThomas Insel, M.D. Director, NIMH Chair, IACC |
| 9:30 | Science UpdateThomas Insel, M.D. Director, NIMH Chair, IACC |
| 9:45 | Neuroimaging the Full Spectrum of AutismDavid G. Amaral, Ph.D. Distinguished Professor, Department of Psychiatry and Neuroscience Chair, Beneto Foundation Director of Research, UC Davis MIND Institute University of California, Davis Director, Autism BrainNet |
| 10:15 | Autism BrainNet David G. Amaral, Ph.D. Distinguished Professor, Department of Psychiatry and Neuroscience Chair, Beneto Foundation Director of Research, UC Davis MIND Institute University of California, Davis Director, Autism BrainNetAlison Singer, M.B.A. President Autism Science Foundation Member, IACC |
| 10:45 | Break |
| 11:00 | NIH NeuroBioBankMichelle P. Freund, Ph.D. Chief Neurotechnology and Molecular Biotechnology Programs Office of Technology Development and Coordination National Institute of Mental Health (NIMH) |
| 11:20 | Briefing on State of the StatesSonya Bowen, M.S.W. Health Insurance Specialist Disabled and Elderly Health Programs Group Division of Long-Term Services and Supports Center for Medicaid and CHIP Services Centers for Medicare & Medicaid Services |
| 11:50 | Lunch |
| 1:00 p.m. | Public Comment |
| 1:30 | Discussion of Public Comment |
| 1:45 | Update on the South Carolina Children’s Educational Surveillance Study (SUCCESS)Laura Carpenter, Ph.D., BCBA Associate Professor of Pediatrics Division of Developmental and Behavioral Pediatrics Department of Pediatrics Medical University of South Carolina |
| 2:15 | Break |
| 2:30 | Panel on Early Developmental Trajectories in Autism Spectrum Disorder (ASD)2:30 Audrey Thurm, Ph.D. Staff Scientist Pediatrics and Developmental Neuroscience Branch National Institute of Mental Health (NIMH)2:50 Rebecca Landa, Ph.D., CCC-SLP 3:10 Catherine Lord, Ph.D. 3:30 – Discussion |
| 4:00 | Round Robin 4:00 – An Insider’s Perspective on Autism Noah Britton, M.A. Self-Advocate Member, IACC4:15 – Teen Transition Sally Burton-Hoyle, Ed.D. Associate Professor Eastern Michigan University Department of Special Education College of Education Member, IACC4:30 – Nevada’s Autism Treatment Assistance Program (ATAP) Jan Crandy Case Manager Nevada’s State Autism Treatment Assistance Program Member, IACC 4:45 – Medicaid Coverage for ASD Services Melissa Harris 5:00 – Home and Community Based Services (HCBS) Waiver Programs |
| 5:15 | Adjournment |
Above words do not reflect any committee, agency or candidate.
Thanks!
Idil – Somali Autism Mom & Minority Advocate