Upcoming IACC Meeting in April – Autism Awereness Month

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Below is the upcoming Federal Interagency Autism Coordinating Committee to be held in Bethesda, MD – NIH Campus. This committee sunsets this year, but advocates and families are working with many members in Congress to reauthorize Combating Autism Act. 

On a side note, can you imagine if state legislator and queen of autism disparity was a member in Congress. Norton would probably be working towards a way to dismantle & eliminate the Federal autism committee as well. I guess we should count our blessings her damage is limited to Minnesota autism families and not nationally.
Members of the public can send their comments or questions for the committee before the deadline. April is autism awareness month – please be kind and have compassion always, but especially this month towards all autism families and autistic individuals. 
Above words are my own and do not reflect any committee, agency or candidate.
Idil – Somali Autism Mom & Minority Advocate
Below is the meeting information:

IACC Full Committee Meeting

Date: Tuesday, April 8, 2014
Time: 9:00 a.m. to 5:00 p.m. Eastern
Place: National Institutes of Health
31 Center Drive
Building 31, C Wing, 6th Floor, Conference Room 10
Bethesda, Maryland 20892
Map and Directions
Cost: The meeting is free and open to the public.
Agenda: To discuss committee business, updates and issues related to ASD research and services activities.
Access: Medical Center Metro Station (Red Line)

On-site parking is available for a fee, but very limited. 

In the interest of security, NIH has instituted stringent procedures for entrance onto the NIH campus.  All visitor vehicles, including taxicabs, hotel, and airport shuttles will be inspected before being allowed on campus. Visitors will be asked to show one form of identification (for example, a government-issued photo ID, driver’s license, or passport) and to state the purpose of their visit.

Registration: On-site registration is from 8:30 a.m. to 9:00 a.m. Pre-registration is recommended to expedite check-in. Seating in the meeting room is limited to room capacity and on a first come, first served basis.

Online pre-registration This link exits the Interagency Autism Coordinating Committee Web site will close at 5:00 p.m. Eastern Time the day before the meeting. After that time, you will need to register onsite the day of the meeting.

Webcast Live: http://videocast.nih.gov
Conference Call Access: Dial: 888-950-8042
Access code: 8689681
Deadlines: Notification of intent to present oral comments: Tuesday, April 1, 2014 by 5:00 p.m. Eastern

Submission of written/electronic statement for oral comments: Wednesday, April 2, 2014 by 5:00 p.m. Eastern

Submission of written comments: Wednesday, April 2, 2014 by 5:00 p.m. Eastern

Please note:  The NIMH Office of Autism Research Coordination (OARC) anticipates that written public comments received by 5:00 p.m. Eastern, Wednesday, April 2, 2014 will be presented to the Committee prior to the April 8th meeting for the Committee’s consideration. Any written comments received after the 5:00 p.m. Eastern, April 2, 2014 deadline through April 7, 2014 will be provided to the Committee either before or after the meeting, depending on the volume of comments received and the time required to process them in accordance with privacy regulations and other applicable Federal policies. Please read the IACC Public Comment guidelines.

Contact Person: Ms. Lina Perez
Office of Autism Research Coordination
National Institute of Mental Health, NIH
6001 Executive Boulevard, NSC, Room 6182A
Rockville, Maryland 20852
Phone: (301) 443-6040
E-mail: [email protected]
Public Comment: Any member of the public interested in presenting oral comments to the Committee must notify the Contact Person listed on this notice by 5:00 p.m. Eastern on Tuesday, April 1, 2014, with their request to present oral comments at the meeting. Interested individuals and representatives of organizations must submit a written/electronic copy of the oral presentation/statement including a brief description of the organization represented by 5:00 p.m. Eastern on Wednesday, April 2, 2014. Statements submitted will become a part of the public record. Only one representative of an organization will be allowed to present oral comments and presentations will be limited to three to five minutes per speaker, depending on number of speakers to be accommodated within the allotted time. Speakers will be assigned a time to speak in the order of the date and time when their request to speak is received, along with the required submission of the written/electronic statement by the specified deadline.

In addition, any interested person may submit written comments to the IACC prior to the meeting by sending the comments to the Contact Person listed on this notice by 5:00 p.m. Eastern on Wednesday 8, 2014. The comments should include the name, address, telephone number and when applicable, the business or professional affiliation of the interested person. NIMH anticipates written public comments received by 5:00 p.m. Eastern, Wednesday, January 8, 2014 will be presented to the Committee prior to the meeting for the Committee’s consideration. Any written comments received after the 5:00 p.m. Eastern, January 8, 2014 deadline through January 13, 2014 will be provided to the Committee either before or after the meeting, depending on the volume of comments received and the time required to process them in accordance with privacy regulations and other applicable Federal policies. All written public comments and oral public comment statements received by the deadlines for both oral and written public comments will be provided to the IACC for their consideration and will become part of the public record.

Core Values:
In the 2009 IACC Strategic Plan, the IACC listed the “Spirit of Collaboration” as one of its core values, stating that, “We will treat others with respect, listen to diverse views with open minds, discuss submitted public comments, and foster discussions where participants can comfortably offer opposing opinions.”  In keeping with this core value, the IACC and the NIMH Office of Autism Research Coordination (OARC) ask that members of the public who provide public comments or participate in meetings of the IACC also seek to treat others with respect and consideration in their communications and actions, even when discussing issues of genuine concern or disagreement.
Pleas Note: Remote Access:
The meeting will be open to the public through a conference call phone number and webcast live on the Internet. Members of the public who participate using the conference call phone number will be able to listen to the meeting but will not be heard. If you experience any technical problems with the webcast or conference call, please send an e-mail to [email protected] or by phone at 41
5-652-8023.

Special Accommodations:
Individuals who participate in person or by using these electronic services and who need special assistance, such as captioning of the conference call or other reasonable accommodations, should submit a request to the Contact Person listed on this notice at least 5 days prior to the meeting. 

Security:
In the interest of security, NIH has instituted stringent procedures for entrance onto the NIH campus. All visitor vehicles, including taxicabs, hotel, and airport shuttles will be inspected before being allowed on campus. Visitors will be asked to show one form of identification (for example, a government-issued photo ID, driver’s license, or passport) and to state the purpose of their visit. Also as a part of security procedures, attendees should be prepared to present a photo ID at the meeting registration desk during the check-in process. Pre-registration is recommended. Seating will be limited to the room capacity and seats will be on a first come, first served basis, with expedited check-in for those who are pre-registered.

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